Please contact us if you require any further help or information. You can call, email or write to us.
Name: Ronelle Baker
Phone: 0800 800 337
PO Box 12063, Penrose
419 Church Street East
Freedom beyond limits
Promoting freedom of choice and a responsive society
We are calling on your support help the thousands of kiwi families affected by rare, life limiting neuromuscular conditions. You can leave a lasting legacy through your will.
Who is the Muscular Dystrophy Association of New Zealand?
The Muscular Dystrophy Association, commonly known as the MDA, began in the late 1950’s as a support group for families affected by muscular dystrophy. Since then the MDA have broadened its scope to support many more people with other neuromuscular conditions, not just muscular dystrophy. In 2009 we celebrated our 50th anniversary. We are proud to have Judy Bailey and Dame Susan Devoy as our long standing patrons.
The MDA is an incorporated society and a registered charity, reliant almost entirely on voluntary donations from the general public, trusts and other businesses/organisations. We utilise these precious resources to provide free information, life enhancing resources, advocacy, counselling and practical support to individuals and families affected by neuromuscular conditions.
We have four regional branches throughout the country which are supported by the National Office based in Auckland. We also have a research arm that funds local research and helps to link New Zealanders with clinical trials happening both here and overseas.
Legal Name: Muscular Dystrophy Association of New Zealand (Incorporated)
Also known as: MDANZ
Charities registration #: CC31123
What are Neuromuscular Conditions?
Neuromuscular condition is a broad umbrella term that describes a variety of progressive muscle disorders, many of which are genetic and impact families. Symptoms can appear just after birth or for others not until much later in life. They can be unpredictable, there are very few treatments available and they cannot be cured.
To find out more, go to www.mda.org.nz